I am a little surprised that she did this without a PEG tube (although I have to admit I did it without a PEG tube). I couldn't stand either Boost or Ensure (they would make me gag) and used Carnation Instant Breakfast instead. I was sick quite a bit in the post Tx phase. I tried decongestants and steroids to cut the mucositis with varying degrees of success. A mild salt water rinse may help but it could burn if she has blisters in the mouth. My mucositis went away at about 4 or so weeks. In early post Tx, progress is measured in 3 week increments.


Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)