Hello all,
I know I keep posting and have one thing after another happen-but now I just feel lost.
My dentist thought I had a mouth infection after just one week of radiation and I felt my throat closing up. Turns out I did not have an infection but my ent gave me antibiotics just in case. My throat was sweling due to radiation and the fact that I have lymphedema of neck and throat and it is swelling more with rad.
I decidied with my onc that I could not stop breathing and have trach just to have radiaiton for insurance. Had no mestasia and negative nodes and stage 2. My ent is furious with me and my oncologist says he perfectly understands and will try to see if chemo can help.
Me- I am now having feelings everyone once in a while of overwhelming sadness, I just want my life back. I want to decide. I want to see my husband happy. I want to eat something one day.
Sorry, Just rambling but just needed to talk.
Anyone just have chemo instead of radiation?


Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.