 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Susie,
Welcome to the neighborhood (upover, I guess). I tried the Amofostine (Ethyol) and lasted about halfway into the treatment before I developed an allergy to it. I hear this happens around half the time. It caused nausea about 30 minutes after the shot. I don't know if it helped but anything that allegedly improves the opportunity for more saliva is worth it, in my opinion. It was about $1,500 per shot times 5 per week for about 3 weeks for me (almost $25,000 USD).
Good luck to your husband. The road is tough but well-traveled.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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