Hello Miss Vicki,

You absolutely have to hang in there! I didn't have Quite the same treatment as you so I can only answer some things. Radiation will sometimes cause trismus which means you can't open your mouth. Several folks here have experienced it to various degrees. You can gently help regain the motion of your jaw a couple of ways. Ask your speech therapist about it, or hang on here and some of the others will be able to give you more tips.

Lastly I think we have all been in your shoes wating for test results. Just remember it isn't cancer until they say it is! PET scans can be too sensitive and read false positive. Several people have had that happen.

take care smile


Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.