Not sure if I was clear about the 2 diff opinions of the drs. The radiation dr doesn't like pet scans because of the false readings, He said he has been doing this for years and when he looks at Brians tongue he says it feels soft and the color looks good, so in his opinion he feels there is no tumor there. The ENT dr who is supposed to be the best in Boston is not so sure that nothings there but then again he does'nt see Brian as much as the radiaion dr because of all the pnueumonia Brian keeps getting he always ends up in the hospital (where the rad dr works) so he sees Brian more. Then the ENT in Boston, although we are establishing a ENT dr closer to home so we will not have to travel as much In fact this new Ent talked to the other ent dr is boston who said it would be ok to take out the trach. so when he went into brians hospital room to take it out he told Brian the pros and cons and how the 2 drs diff on the opinion of the pet scan ( first news to us) He scared the hec out of Brian and Brian said to leave it in. The poor guy has been through so much and now to have this thrown at him is just not fair. But I keep telling him to hang in there, and that he has proven all the drs wrong so far. They did'nt think Brian would survive the cancer because it had gone to far. And they said only 1 in hundred men would have survived the Bleed out. And here he is. We just have to clear up those lungs and to fatten him up.
Its a fine line with the protein. If he has to much his liver has A hard time processing it and not enough he doesn't gain weight and he need the protein to heal. So were hoping the new food will help and that he can tolerate it. Well thanks for listening
B


BOT stage IV SCC moderately diff, invasive. radiation 2 chemos. DX 06/06. Ended radiation 8/11/06. Bleed out from tonsil area from radiation necrosis 10/27/06.