 "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Hi Lyn
I received an email from Helen to let me know that we had another Aussie on the Forum.
Have been in contact with both Helen and Tizz (Meredith) for a while now and hope we can meet soon. This has been via email and I know I should use the forum more as it can benefit others.
One of the worst things about this is the not knowing how long things take to improve and when I asked earlier and the doctor replied
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
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