|   "Above & Beyond" Member (500+ posts) 
 Joined:  Apr 2007 Posts: 794 |  Hi Steven,Has anyone suggested tussionex for the stringy saliva?  I know that helped my mom tremendously.
 My mom's RO said he wanted to wait for some time before he ran any new PET/CT scans, he was worried about scar tissue from the treatments.
 My mom has been a little unbalanced the last two days, I am now wondering if that could indeed be neuropathy.  I had read about it in the beginning of treatments but had forgotten about it until I read your post. >>> Thank you!  I am always amazed at how much I learn from someone else who is asking questions.
 Try not to fret so much --how's that expression?  my dad was born in raised in Cherokee County, GA. -- try to enjoy today, find a positive in as much as you can.  I see my mom starting to slide down worryhill, I know it will just exhaust her.  I am not making light of any of this, it is so frightening, mind consuming, and generally overbearing.
 I have to say that the internet scared the hell out of me, till I found the OCF.  I appreciate all the honesty and stories, and the absolute acceptance from everyone.  It has been a gift for me.
 Donna
   Donna
 CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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