Hi, my name is Stephanie, I'm a 29 year old mother of 1, and I was diagnosed on 5/9/07 with ACC (Adenoid Cystic Carcinoma). I had a tumor in one of my major salivary glands which was removed, after many reassurances from many different doctors that it was probably nothing because of my age, but that turned out to be cancer. It's still weird to use that word to describe myself. I had the surgery to have the tumor removed, which was successful. However, there was extensive perineural invasion (meaning it's spread into my nerves). I've undergone Proton radiation at UF & Shands hospital in Jacksonville. I finished that 6 weeks ago, but just feel like I'm kind of in limbo. It's been hard to find much information on this. Is there anyone out there who is in a similar situation? Or hopefully knows more about this than I do? I've never posted anyting on a site like this or done any talking to people I don't know via the internet, so this is kinda new to me. Can anyone help?
Stephanie