Amy,

In case you still check this post - my husband lost taste during treatment and just like Markus said then couldn't even drink or eat by mouth it was so painful.

Jim is now 5 weeks post treatment. Within the first 2 weeks after treatment he had some taste - mostly at the tip of his tongue. As time goes on it is coming back! Hang in there! Things will look worse before they get better but it is nothing short of miraculous that they usually do!

The body is truly amazing. After treatment ended I kept a diary and took pictures each week. Within 3 weeks I had a l lot of proof positive to show my husband just how far he had come!

Be supportive and hang on...you'll all make it!


Caregiver for Jim who has HNSCC (Tonsillar and right base of tongue T1, N2, Stage IV) 55 Yrs old moderate drinker and never smoked.