Reading between the lines in posts in other threads, for some folks, the tube apparently becomes a surrogate for the cancer process itself, but a surrogate that can be fought every day and beaten (getting by without it).

In my case, I had the tube and was glad I did, altho I wish they'd told me more about swallowing and trismus (I've gone back and talked to the nurses about it and they took good notes for future folks).

Also, in my case I was taking Amifostine (Ethiol) and they told me up front that if I couldn't keep my weight up, they couldn't keep giving me the Amifostine -- I frankly don't think I could have done that without the tube (If one barfs, the nourishment value is zero and you then don't know how much more to take to replace it, plus it's hard to choke more down if you've just barfed...).

I kept on swallowing my daily meds and took all my water by mouth, so I was swallowing, just not the liquid nourishment. Good thing about the tube is you don't have to taste any of the nourishment so the flavors didn't matter <g>.

Unfortunately, I became allergic about halfway thru my XRT, so I had to discontinue it anyway. I'm getting some saliva back (one year out) and don't know if the Amifostine has helped that or not.

I rigged an easy-disconnect neck holder for my tube so I didn't have to tape or up or anything like that.