Anne Marie,

First you need to keep your docs well informed of each and every symptom. They or their nurses can prescribe many different things. Some may work, some may not. Just because something doesn't work, don't give up, but be sure to let your docs know.

As Cathy said, the most important aspect of his treatment is his daily water and "food" intake. His docs again should tell you what they recommend but a good rule of thumb is 48 oz water and 2000 cals a day, EVERY DAY. The PEG tube may play an important role although I did not have a tube at my docs suggestion. Talk to your doc re the tube approach.

Also watch for constipation which is primarily caused by either the meds or insufficient water consumption or both.

Again, the most important thing for you to do is to keep your docs well informed. We are not generally docs, we just have the experience to draw upon and we will share our experiences with you and what worked and what didn't work for us individually. Also remember what worked/didn't for us might not be the same for anyone else.