 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | As you can see I finished a very similar Tx 8/28/06 so I am 1 month ahead of Mike. If you have ANY questions please ask. I did not have a tube. I have regained appx 1/2 of my weight loss and eat anything I want. I still don't taste too well so I also drink 2 to 3 cans of Carnation VHC a day. I have recently scaled back to 2300 cals a day because my dear mother in law told me last week that I have a belly!!! I was doing 2800 cals a day to put 2 lbs a week back on and I guess it WORKED !! I have no swallowing pain or problems so I never had my throat messed with. I have permanent high FQ hearing loss and still have dry mouth. I go tomorrow to see if my first post TX Cat is clear.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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