 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Linroth, When they told me that I had SCC in my 2 nodes they said it had to start somewhere else. I then got to see the Chief Head & Neck surgeon at Moffitt Cancer Institute. He scoped me and said "you see that area at the base of your tongue? (he had pictures of the scope on his computer), he continued "I think that may be your primary." He told me that he wanted to put me under and biopsy several areas starting with my base of tongue, then take the tonsils out and keep trying until he found it. I agreed and the next day I came back thinking I was going to all sorts of holes in my mouth but when they woke me up, my wife was there saying he found at the base of tongue so he stopped. The doc told us that it was so small he probably got all the cancer in the biopsy. They still radiated that area to be safe.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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