Hello Debra and Welcome!
My husband is three years out from treatment and doing very well. He relies almost completely on his PEG, but this has allowed him to regain lost weight and more. Like Joyce, I eat a lot of salads--cooking is just not that interesting anymore. We've found lots of other things to do together, including working on the OCF book in progress.

Encourage him to keep swallowing and doing his jaw exercises, though difficult, will be worth it in the long run.

Have you found the Caretaker Forum on this site yet? Lots of caring people here, as everywhere on the forum, and helpful ideas specific to your role. I'm glad you're here.
Hang in there,
Charlotte


Caregiver and wife of Tom: SCC BOT, mets to neck, T4. Dx 3/03: multi-drug chemo, IMRT, Tx 9/03, No surgery.