Hi - I don't have ACC, but my mom does. She was diagnosed almost 8 years ago, just before she turned 50. Hers did metastisize after about 5 cancer-free years, but it was so slow growing (I hear that's a characteristic of ACC) that they didn't have to treat it for 2 more years, until last fall. The tumors have now stopped growing again - whoohoo!

I agree about reading statistics carefully - 15% 15-year survival does sound scary. But remember it's the average of a lot of individual cases, some people may be older or weaker when first diagnosed, and many people do live with and post- ACC for years.

Congrats on being done with radiation, both of you! My mom says that was the worst 6 weeks of her whole cancer battle .