Hi all,

Just checking in again. He's still in lots of pain! He had an allergic reaction to something at the end of last week which caused his already blistered and sore lips and face to swell up. He just refuses to slow down and has been outside working on the cars, getting the plow truck ready for winter, mowing the lawn, etc. and probably got into something he shouldn't have. They did Benadryl for 24 hours and when they decided that wasn't doing the trick, put him on steroids. Seems to be a bit more comfortable now. He said even water hurts now, where as he had been able to drink water and eat soft foods throughout his treatment. They're going to check in with him on Monday, and he has a follow up with his radiation nurse practitioner next Thursday.

The radiation oncologist said it would probably be a few weeks before he turns the corner and starts noticing he's not feeling quite so bad. Anyone remember how long they took pain medications after ending radiation?

Dad was diagnosed 2/28/18 w Stage 4, N0 Verrucous carcinoma (VC) an uncommon variant of SSC
Mandibulectomy and free-flap reconstruction 5/30/18
Diagnosis changed to SSC.
Began treatment of 30 rads and 5 Cisplatin Cycles on 7/18/18
Decided not to do any more Cisplatin after the first one.
Finished treatment on 8/31/18.
3.19 Abscess & Recurrence wide mouth resection
4.16.19 Scapular Flap Reconstruction surgery
9.6.19 Clear CT!
8.6.20 Clear CT!