OP Platinum Member (300+ posts) Joined: Jun 2013 Posts: 346 Likes: 3 | Not yet ... it is SO hard to find the time to practice wearing them, since I am so behind on regular nutrition that I need to NOT be wearing them so I can eat when I'm able ... catch-22. They've helped me get them shaped better, so that's good ... but I'm not in a physically (or mentally) healthy place right now. My various docs are working on it.
Oh, and my old speech therapist went and left that company while I was out... I'm hoping that they might tell me where she went. Not that the other ladies aren't good too, I'm sure, but with all the other stress, it would do me a lot of good if I could get back with the person who already knows me and has the rapport. She's great at balancing the nagging and the sympathy.
It's always something ... but I suppose it could be worse.
Surgery 5/31/13 Tongue lesion, right side SCC, HPV+, poorly differentiated T1N0 based on biopsy and scan Selective neck dissection 8/27/13, clear nodes 12/2/13 follow-up with concerns 12/3/13 biopsy, surgery, cancer returned 1/8/14 Port installed PEG installed Chemo and rads 2/14/14 halfway through carboplatin/taxotere and rads March '14, Tx done, port out w/ complications, PEG out in June 2017: probable trigeminal neuralgia Fall 2017: HBOT Jan 18: oral surgery
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