Hello to all...This is a community I had not hoped to qualify for membership in, yet here I find myself. After two biopsies (10/17 and 2/18), my ENT says to me we should "get more determined" because of what the February pathology showed. I said could you please be more specific...and Dr. Wright (I prefer to refer to him as "dr.wrong") says we need to cut out a portion of the right side of your tongue!. Today? I say. Oh, no...he replies, We will need to put you under general anaesthesia in the Surgery Center to do that. Ok, when, I inquire. How about April 19th? [Why was there not more urgency to get this cancer out of my mouth? !, I've felt like I've been walking around with a hand grenade in my mouth a little over a year, and I'm afraid to check and see if the pin is still in place. "Yay, though I walk through the valley of the shadow..." Was that how it went? So April 19th comes and goes. I have to wait 2 more weeks to see the ENT for the results. I pass him in the hall on the way to see him in his office and he states, "It's good news!". I get in the office, assume the position in the highchair and he tells me they found Squamous Cell Carcinoma, an aggressive form, in my tongue pathology.......No how is that GOOD news!?! He thinks it is because "the margins in the sample appear to be clean". Forgive me people if I am not jumping up and down with joy at this point in time. I was just told that they removed cancer from a part of my body, and my speech in unintelligible (for months, I'm told., but I just received a cancer diagnosis and my next question is how does he KNOW he GOT IT ALL? After repeatedly being told not to worry, I am even more worried that ever because it feels like I am the only one here who is noticing that maybe the Emperor is not wearing any clothes. I feel so all alone and unsupported, because I am. And I know deed in my heart that I MUST get OFF of the Suboxone as soon as possible that I was using sublingually for 7+ years for pain management for my Fibromyalgia. At the same time I know that I cannot function with the level of pain I experience unmedicated. What am I to do? I am searching for a doctor who can halp me. Thank you all for the opportuning to be a part of this forum and for sharing your experience and your heart (the best part of you) - Suzanne


Suzanne M.
SCC(a) tongue (Stage unknown) 4/26/18
Biopsies 10/17 and 2/18
Glossectomy of right side of tongue 4/19/18
ENT's treatment plan: "wait and see"!
working on getting 2nd opinion from oncology ENT at teaching hospital
non-smoker/non-drinkeer
7+ years sublingual Suboxone
Suboxone side effects: tongue numbness, pain and irritation;
studies with rats were positive for Leydig cell tumors and positive mutagenicity with the Green-Tweets survival test.