The Oral Cancer Foundation (OCF) is comprised of oral cancer (OC) patients/survivors and caregivers. We discuss primarily oral cancer, treatments, recovery, etc. Since we do not have medical professionals guiding our discussions we are not experienced or qualified to second guess what advice doctors (who have years of school, clinical patient experience, complete medical histories, and the patient in front of them) give to their patients. There are very few members who have oral cancer caused from dysplasia. Regardless of the cause treatment is the same for all OC patients. Its unlikely that even those who have had dysplasia have learned much about it as OC is a potentially deadly disease making it much more important to understand than something that is not life threatening.

OCF's online patient support public forum focuses on OC, not on something that only 7-10% of people who have been diagnosed will ever have their dysplasia turn into cancer. Why does this happen? This is something medical professionals would answer. This link has some info from our main OCF site. That may help answer some of your concerns. You can also put dysplasia into the search box and read other posts about dysplasia. If you have further questions, its best to go to the best resource... your doctor.


Main OCF Site, premalignant lesions



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile