Do you have a first opinion on your treatment options yet? I couldn't quite tell. And yes, if it makes you feel better, it's worth getting a second opinion, if you can find a doctor you trust. Are you going to take that friend with you to your appointment? It's a really good idea to have a second set of ears to listen to what the doctors tell you, because as you've already noticed, it's really hard to focus and remember sometimes. ((Hugs))

Hopefully Christine or somebody will chime in soon ... one of the long-term members who really has a great grasp on the things to remember and ask. I feel like I'm still learning, myself, most of the time. But I wanted to post anyway, just so you know you're heard, and you are NOT alone.


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery