Welcome son of patient!

I just mentioned you in another post with a new member, who has PNI in the tongue found after surgery. I asked they contact you if they get a chance.

I’ve had PNI two or three different times, i forget, and was able to beat it last time, so far! There is still much to be learned about this type of cancer, and not too sure how much they accomplished since mine? You may know more than me, as I don’t recall discussing it much here since, and had to think twice before posting, and seems so long ago (a good thing).

It’s probably not done everywhere, but I had my PNI resected with a radical neck dissection in 2012, and High Dose Intraoperative Radiation done during sugery. This was the first part, and after 4-6 weeks recovering, I had chemo, Erbitux and taxotere, along with IMRT radiation.

My second PNI was almost a year later, after a resection with my carotid, did the same radical neck dissection after testing, and IORT, but was sent for Proton Radiation with Carboplatin about 6 weeks later, which seemed to do the trick! Tomorrow I go for my 6 month PET/CT.

I just realized the time, so I hope this little bit helps!

Good Luck!




10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs