 Platinum Member (300+ posts)
Joined: Jun 2013 Posts: 346 Likes: 3 | Well, you are definitely better off with a different surgeon. So sorry you are having to go through this, and with such an inconsiderate doctor! When is your next appointment? Tomorrow? Try to take someone with you, if you can, to help you remember all the things you're told ... you think you'll remember, but you might not, and an extra pair of caring ears is helpful. And then when you have extra questions, don't be afraid to call them and ask ... that's what they do.
((hugs))
Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery
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