Eleven weeks post treatment. For those of you with a struggle to return to eating, hang in there. We are moving forward with the speed of a glacier, but we are moving. Added in eggs and meatballs this weekend to the food he has ingested successfully. Still balancing with the pull between the VHC Boost PEG feedings and transitioning to food by mouth. If he eats a meal by mouth it is hard for him not to skip the PEG feeding near that time, but he never takes in as many calories by mouth. He can drink most anything now which is progress, too. Dry mouth of course is an issue. We have used many ideas from this site to compensate for that problem. Awaiting the PET and results before we decide what to do next about his PEG. At this point he could maintain by mouth if he was really motivated. Sadly, he still says that everything tastes like cardboard and nothing about eating is enjoyable yet. Still hoping that comes. I've invested in a high quality blender to help with the transition to more foods by mouth. Plus that will allow us to both eat the same foods. He still has zero appetite either. All in all movement in the right direction but still much slower than he would like.


Wife to DP. DX SCC BOT 1/31/17
First treatment 2/27/2017 Cisplatin 3 times and IMRT
Last treatment 4/18/2017
Clear PET 7/13/2017
PEG removed 8/4/2017