My hubby finished his SCC BOT treatment in February and is recovering fairly well. First follow up CT scan 3 months later was clear, next CT scan will be in November. He will try to return to work as a substitute teacher this fall. He is also applying for SSDI and has some other medical conditions that may also help him for those benefits. All is appearing optimistic so far, but we are both finding difficulty in trusting that everything will be ok from here on out. I think we are both still a bit shell-shocked from this experience. His diagnosis was completely unexpected, as he has none of the typical risk factors for this type of cancer. The fact that we don't know (and probably won't know) exactly what caused it is unsettling. My best guess is a genetic mutation or possible dental trauma from some crooked teeth that have since been extracted. I try not to dwell on the questions that we will never have answers for, but they always seem to resurface from the corners of my mind. I'm wondering if anyone else has struggled with the adjustment back to "normal life" (whatever that means, or will mean) after treatment is over, and what has helped you make your way forward?



09/23/2016 39 year old husband dx w/SCC BOT, HPV negative, keratinizing, T4A N2B M0.
11/09/2016 Right hemiglossectomy w/neck dissection. 44 lymph nodes removed, 4 malignant. No extra capsular extension, no chemo.
11/15/2016 Received g-tube.
11/23/2016 Dx w/pulmonary embolisms both lungs.
12/27/2016 Started 30 rads (TomoTherapy). No Cetuximab due to PE's.
02/07/2017 Last day of rads.
02/25/2017 G-tube removed.
05/10/2017 1st follow up CT scan clear. Next scan 11/2017.