Welcome to OCF! Im so sorry you are recently diagnosed. I know you wanted to hear from aotagandco. Im sorry to say they have not been here since Nov 2014 so its highly unlikely they will see or respond to your post.
Heres a link from the main OCF site it tells about pre-malignant conditions. There are links on the page to read more in depth info. Ive also included another relevant link for you. Hope this helps!
Regardless of the path to SCC, your treatments are likely to be surgery and or radiation with or without chemo. For that we have been thru it and will be able to help you thru treatment and recovery. Since your condition could be considered a complicated case, I would recommend going to a comprehensive cancer center (CCC) for at the very least a second opinion, possibly treatments. At a CCC, they should have the most experience with complicated cases.
OCF Main Site --- Pre-Malignant ConditionsNCBI - - - Proliferative Verrucous Leukoplakia.Best wishes!
