Hi, I am new to this forum and found aotagandco's post on Proliferative Verrucous Leukoplakia and Squamous Cell Carcinoma. I have just been diagnosed with the same and have been told I need surgery. If you are still out there aotagandco, can you give an update on what you experienced? Or anyone else who has this diagnosis. I hope to find out as much as I can. I concur with the poster that some oral surgeons and dentists have no idea of the significance of a PVL biopsy report. I had leukoplakia for over 20 years and no one blinked when it turned to PVL 10 years ago. I went back to an expert I had seen 20 years ago who got me on the path to get this checked out.