OP Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | Christine, We are all doing well at the moment.
As far as seeing a dentist very familiar with OC there aren't any that I've been able to find. I had one last year that said he was, but works never take care if any issues. He just wanted to watch. I was tired of watching and waiting so I found the current dentist I am going to. He is very thorough, but something didn't sit well with me when he said I needed a root canal for an infection. I decided to go get a second opinion and that second opinion said it didn't present as infection and needed to see an oral surgeon and said a biopsy to see what's going on would be best. I went to the Oral surgeon my ENT and RO referrer me too. He said it was virtually impossible to get spontaneous necrosis. I don't know if I buy that story. He did say it could be osteomyelitis, but the root canal would tell us more. Said root canal was least invasive. I am very tempted to go to TX to dental oncologist there to get an opinion.. I hate the feeling the everyone is just guessing.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
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