Hi, Everyone! After a few months of improvement to the point he could eat real food and think about traveling again, my husband has developed painful ulcers on his tongue that are not responding to prednisone or topical treatments. Lidocaine and pain meds give him temporary relief. But he is so discouraged and depressed at having to go back to eating liquids and mush again. We both need encouragement and tips from anyone and everyone who has something to share that might make life easier for him. We have plans to go to LA in a couple of weeks for an event with one of our grandchildren, but that is looking doubtful.

Spouse of 56 years has had radiation therapy (2004) and surgery and proton therapy (2016) for oral SCC in his tongue. No active tumors presently, but radiation mucositis is causing him severe pain. Affecting eating, talking, quality of life. Dealing with depression. Look for support and tips from those who have been there.