Had to cancel dental appt on Thursday as my brother who is a quad was having chest pains and shortness of breath at 2 am on Tuesday. We went to the ER by ambulance. He did have a fib and out of the hospital now with a monitor for 30 days. I always stay right with him 24/7 when he is in the hospital but those so called recliner chairs in the rooms are getting more and more unbearable.

Rescheduled the dental appt for Wed. I am terrified to go as my mouth is such a mess. The pain, burning, and horrible taste is just right at more than I can take. I am about to go crazy with this! And....frankly I just don't want anyone to even see inside my mouth. I am a year and a half out of treatment but mouth and throat is not getting any better, in fact it seems worse. I am on a feeding tube for all nutrition as my mouth and throat is so dry. I can't get anything to go to the back of my mouth to swallow except sips of water or clear soup.

I am going to my regular dentist Wednesday but wondering if I would be better finding a specialist in oral cancer issues. Does anyone have any suggestions on this ?


Sept 2002 Rt breast cancer no chemo or radiation.
March 2015 Rt tonsil cancer - walnut size lump rt side neck.
March 2015 Scan, biopsy confirm
March 2015 Port, G tube placed, 10 teeth removed.
July 2015 completed 5 chemo/35 radiations
Sept 2015 Cat Scan all clear
July 2016 G tube, port still in place
Ive had Thyroid "graves disease" and Lupus for many years.
4 kidney stone surgeries past 3 mo with over 100 stones still there !

*** Update... Jo passed away 12/20/17 ... RIP Jo ***