Sheryl, Im very sorry to read about Charles's latest surgery. Poor guy has been thru way more than any one person should have to endure.

Im glad to hear he is managing to take in a couple of those giant super caloric milk shakes. I loved them!!! Most patients have issues with their sense of chocolate returning, but for some odd reason I could taste the chocolate in the shakes and also I found yoo-hoo soothing on my sore throat.

This may have already been discussed with you (and I apologize if its a repeat) but just in case it hasnt... have you looked into the new immunotherapy drug, Optivo? This is something that is supposed to manage lung tumors. Please take a look at this thread, I hope it will be of some help to you...

Immunotherapy Trial/Drug

Best wishes!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile