Thank you for these responses and the very useful link. I've found OCF invaluable ever since my first big surgery in 2009. New Zealand has a different medical system - which is why we need our own support network - but the underlying principles are the same. When people warn about the dangers of the internet (really!) for patients, I always think, "but I found OCF on the internet".


1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.