Hi Angie, I too want to say hello. This is absolutely the best support Forum there is. Come here often to ask questions and seek support. There will always be someone who can guide and support you.
I want you to know that You will get through this. Yes, it can be a hard road, but you will get through this. Surround yourself with loving and supportive Family and Friends. They will help with the daily logistics of getting to treatments and helping you manage everyday life as well as the so important lifting of your spirits. We here will understand what you are going through and give you advice on many many things. Coping with the trach, secretions, speech, chemo , diet etc.
Re read Christine's advice above.
Always stay positive, come here to vent if you need. We get it.
Thinking of you,
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!