Thank you, Paul, for responding to my post. You have been through a lot and it's wonderful that your recent scans have been clear! I will have a MRI with contrast the end of February followed by a PET sometime after that. I've received excellent care at Stanford, but this cancer, as you know, is relentless and seems to find a way to return.
If there are any others out there who have had neck metastases, I would love to hear from you. I have read some studies where often patients pass away from such a recurrence within 3-9 months. My doctors refuse to site statistics, but I do think it's helpful to objectively be aware of the different paths this disease may take. That said, I'm off to Boston to see my 20 month-old granddaughter! As the Proverb says. "A joyful heart is good medicine."!

Last edited by Teacher Karen; 01-26-2016 10:58 AM.

Teacher Karen
DX: SCC of right maxillary alveolar ridge, 9/2010.
Surgery 11/2010, removal of 4 teeth and gum.
Surgery 11/2012, removal of 3 teeth and gum.
IMRT 1/2013-2/2013
Surgery 1/2015 retromolar trigone resection; removal of 1 tooth and gum.
Surgery 10/2015 left modified radical neck dissection, inferior parotidectomy, external carotid artery resection.
Cetuximab based chemoradiation 64.8 Gy to resection bed.
Surgery 6/19/2018 Right inferior maxillectomy, bilateral low palate resection