 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | I have had a spot growing larger since around 2007. I also have spots all over from aspiration pneumonia and damage to my lungs from significant breathing problems and all of that has created COPD. The bigger issue is fibrosis in the hylar region that appeared shortly after treatment that is considered radiation damage that never healed.
When you worry or are subjected to stress, cortisol gets dispatched and fibrosis grows. Periodic early A.M. cortisol tests will give an indication stress is too high and potentially advancing fibrosis.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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