OP  Supporting Member (50+ posts)
Joined: Jun 2014 Posts: 86 | With deep, deep, deep sadness my brother who was 23 years old passed away on October 29,2015. So much happened to my brother in the end it was crazy. His neck opened up and he had a wound taking up his whole neck. The wound was the size of a watermelon. Two weeks ago we had to do an emergency surgery to put a trach in so he can breathe better and be more "comfortable" on October 29th at 4:55 a.m. My brother bleed out and he bleed out in my arms. His artery bursted. He was gone within minutes. I am so so so sad and very depressed. This stupid disease!
22 YO Brother Dx 6/17/14 w. SCC R Lateral tongue
CT scan clear LN 6/20/14
HPV-, non-smoker
R tongue, right hemiglossectomy Surgery 6/24/14
(Not reoccurrence but went to NCCC instead
R neck dissection, tracheostomy, radial free flap, R tongue dissection surg 8/11/14
PT1N2B.3 positive lymph nodes out of 13
Extranodal extension present
9-15-14 IMRT (35x) & Cisplatin (2x) begun
10-21-14 peg in. 10-31-14 1 round of carboplatin
11-4-14 IMRT rx comp
3-27-15 Recurrent tumor in lymph node, L neck diss.
10-29-15 brother passed away, 23 yrs old
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