Welcome to OCF, jewells. Im sorry to hear about all the complications your loved one has endured. The frustration is completely understandable. Ive had this surgery myself and I know its not an easy one at all. I needed 8 months of IV antibiotics to help heel the surgical site and battle infections, plus way too many HBO dives to even count anymore. If he is on augmentin for so long and its not working then maybe a stronger antibiotic or a different one would help.

First, if radiation was given as a treatment for OC then thats probably why the HBO was needed and also why there are heeling issues. Im sure his doctors are doing their very best to help. So often they are at a loss when heeling is impaired.

Is there a wound specialist department at the treatment center? What about a therapist who treats cancer patients? Depression is very common among oral cancer patients, many take anxiety meds (caregivers too). He can also join our group and we can help give him info and support. Im sure he probably feels so alone right now. Knowing there are many others out there like himself can be very reassuring. Ive been where he is and Im now 6+ years later and Im doing very well. Recovery from this type of major surgery is a long road. I felt like I would never recover and be able to have any kind of life anymore. It took me well over a year post surgery to be ok again.

Since you mentioned being bounced from doctor to doctor, does this mean he is not being treated at a comprehensive cancer center? If its an option that he is able to do, then I would suggest seeking out further treatment at one. Sometimes going to the top CCCs is the only place to go when there are complications. They treat hundreds of these types of unusual cases and have the latest methods to help when problems occur. I understand his frustration but it cant hurt to at least give it a try.

Best wishes with everything.

List of CCCs



PS... As a caregiver, take some time for yourself too. Being a caregiver is a difficult job. Be kind to yourself.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile