Welcome to OCF, Deb & Co! (Great screen name smile ) Im so glad you have found our group! We can help you with info and support. You hit the nail on the head saying others can only understand and help so much. Our site is made up of OC patients/survivors and caregivers. We have gone thru this and seen first hand how awful OC is and its brutal treatments.

At only 2 weeks post rads, your husband has a long way to go before he will crawl out of the tunnel. Most patients will say the first 2 or 3 weeks post rads were the worst of the whole thing. Radiation is still working, just like you are still being treated and thats when you feel abandoned by the medical team.

To make his recovery (and everything else easier) focus on his intake. Every single day push to get him to take in a minimum of 2500 calories and 48-64 oz of water. If he can take more, say 3000 or 35000 calories with a focus on protein intake this would be even more helpful. This is what will get him back on his feet. If he is using the feeding tube for his nutrition then remember to count the fluids there as water too. Also adding water to the mix (if he is using the feeding pump) or an extra syringe of water to flush the tube helps to keep him hydrated.

In a week or 2 the thick gunky mucous will change practically overnight into dry mouth. Using a waterpik on its lowest setting with a tiny amount of mild alcohol free mouthwash helps with the gunk and the bad taste.

Hang in there, the worst of this is just about over.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile