Pain is like that from my experience. Pain seems to be referred to the ear in my case too but of course you should report the pain to the docs! I wonder if it's positional in that when you're lying down things seize up a bit and set of a pain chain reaction. Last time I had no pain at all towards the end of my 10 days in hospital and then had such bad pain when I got home that I rang the hospital and they sent me to A & E to have my meds sorted out.There doesn't seem to be a straight line decrease in pain.

Good luck and congrats on doing so well otherwise.


1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.