I am 52 y/o and two years out from bilateral radical neck dissection, left floor of mouth reconstruction and full dose chemoradiation for stage IV oral squamous (P16+). I am struggling terribly with wicked, 10/10 neuropathic pain in the neck and shoulders from nerves that were damaged in surgery, irradiated and now fibrosed: a trifecta, the perfect storm for nerve destruction, absolute screaming pain 24/7. I have gone to best pain management teams available in my area. It's just down to finding the right drug combination to optimize relief, but nothing really works to remove the pain. I will live with this the rest of my life (however long that is). I am not thriving, just surviving. I cannot work or do most of what I could once do, (swim, run, bike, even reading a book for 20 min is difficult) ...whew, Is anybody else out there having as much pain as me?