[quote=donfoo]Very interesting. I just figured it was since I sit at a terminal hours on end, that was the primary cause. I do find when I make a conscious effort to stretch and take more breaks the pain is noticeably lessened.

Is an orthopedist specializing in shoulder the go to person or is it more important to find someone who treats post tx HNC and other radiation blasted survivors?

I've been considering hitting the gym but do not want to do that until I talk with PT as it would be just as easy to make thing worse than any better.

Don [/quote]

Don, I never answered your question. I went to an orthopod, two actually, and they both did surgery, because that is what they do. I think that caused more problems. I also have had at least a hundred PT sessions and never could maintain the gains achieved. As soon as I got into a cold, air conditioned room, everything tightened up. My most recent successes were using what the PT's did but rapidly accelerating the additional weight. Then I go to an ART provider once a month for a tune up. With about 100 weeks in a row at the gym, a big portion of my back filled in where a lot of atrophy was. It just inflated like a tire about 4-6 weeks ago. The ART dude was blown away and the therapist that works on me was shocked as well. They have been on this journey with me for over 2 years and the office for 5.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023