I have so many feelings about this part of my husband's journey. The one that keeps me up at night is should I take FMLA now or try to keep working? I'm fortunate enough that I can work from home, but I don't want to miss a minute of being with him and helping him. I don't want to look back and have any regrets. He is now under Hospice care at the urging of his drs. He is at home and can walk around a bit. But his weight had dropped to 107lbs and he has been hospitalized for infections for a week each for the last two months. His parents are coming to visit for a week at the end of this week.

Caregiver to husband 53 SCC stage 3 soft palate 2011 Rad, recurrence tongue stage 4 2012 induction chemo, partial glossectomy surgery, cancer back left rad neck dissection 2013, more chemo, allergic to erbitux, cancer back 2014 floor of mouth and jaw, mandibulectomy scheduled 3/5/2014