Went for a visit with surgeon yesterday. Charles passed his swallow test and has graduated to clear and mushy liquids with nose feeds to supplement. He is coughing a lot, I think due to dryness in his lungs. Convincing him to get moisture into his stoma hasn't clicked yet. )-: He wakes up depressed everyday but after a good truthful conversation about how good it is to be alive he pulls out of it. We'll be spending Thanksgiving today (at least an hour or so) with 20+ of our very loving friends. I think that will help him. Will take delicious soup he can eat.

The surgeon did recommend another round of radiation. YIKES. Due to nerve involvement. Don't quite understand yet but will see him again next week and will discuss further.


Wife/caregiver to Charles
ENT diagosed SCC Rt Tonsil Stage IV, MET 6 lymph nodes in neck 1/2001
Tonsillectomy, RND and six weeks RADS 2/2001
ENT diagnosis from CT scan, SCC in Rt tongue 2/13
25% of tongue removed 2/13 (clear margins)
SCC BOT with mets to 2 level 2 nodes and Lt. Delphian node 8/2014
Surgical biopsy shows cancer in larynx 9/2014
Laryngectomy, resection & rebuilt tongue w/ pectoral muscle, selective neck dissection 11/2014
Recurrences '16 HPV Neg No EGFR Mutations Detected