It's so overwhelming it's hard to even let it sink in. In the back of my caregiver brain is this suitcase of thoughts . . . Like, what is this? What now? Charles is having a party! He is ecstatic. Just before his surgery yesterday we had the what if the cancer is down in your voice box with his surgeon. We had decided where ever it is to remove it. So I spend a few hours wondering what it would be like not to hear my husbands voice again. )-: Then his surgeon comes out looking VERY perplexed with the best news. Guess I better join the party. WOW.


Wife/caregiver to Charles
ENT diagosed SCC Rt Tonsil Stage IV, MET 6 lymph nodes in neck 1/2001
Tonsillectomy, RND and six weeks RADS 2/2001
ENT diagnosis from CT scan, SCC in Rt tongue 2/13
25% of tongue removed 2/13 (clear margins)
SCC BOT with mets to 2 level 2 nodes and Lt. Delphian node 8/2014
Surgical biopsy shows cancer in larynx 9/2014
Laryngectomy, resection & rebuilt tongue w/ pectoral muscle, selective neck dissection 11/2014
Recurrences '16 HPV Neg No EGFR Mutations Detected