 Contributing Member (25+ posts)
Joined: Mar 2014 Posts: 31 | Hey larry - I hope things are starting to settle down and you are getting into the routine of treatment. A lot of people seem to have given you good advice all ready so I will just add that I think you should try to swallow something every day. Even if/when you become 100% reliant on the PEG tube you should try to swallow something even if it's just a half a glass of water. It will be easier to get your swallowing back after treatment if your swallowing muscles haven't "forgot" how they are supposed to work. They are just muscles and all muscles benefit from being used. Best wishes!
2/2014 SCC T4aN2bM0 HPV+ Tonsil/BOT
3/3/2014 PEG and port
3/10/2014 Chemoradiation therapy begins 260 mg Cisplatin x3, 2.12 Gy rads x33
4/23/2014 Final Cisplatin infusion
4/25/2014 Final radiation treatment
7/17/2014 PET scan. Lymph nodes clear. Primary tumor reduced both size and SUV (borderline hypermetabolic) so it's inconclusive.
8/2/2014 PEG tube removed.
11/24/2014 Saw MO, RO, ENT, and Head & Neck Surg. over past 10 days - all agree no recurrence but enhanced surveillance will continue.
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