I stayed home with Kris for 4 weeks, though he had a total Glossectomy as well as the Laryngectomy. Due to the bilateral radical neck dissection, Kris needed help with dressing as he couldn't lift his arms past shoulder height. I helped him with his meds, nebulising saline to loosen the mucous so he could cough. Showering took some time to master, but this can be done at night when you are home. I probably could have returned to work earlier, but I just wanted to be there for Kris and to be absolutely sure that he would be ok on his own.
I worried a lot about how he would contact me/ anyone if he did need help. Of course this was simple. He could still use his phone to text, .he could either text me at work or our neighbours who are home all day. He actually never needed to text either of us for help.
They should test his swallow before he leaves hospital. Does he have a PEG. Kris used the PEG and his swallow for the first 4 weeks. One day I was just fed up with crushing/dissolving his meds so gave him a pill to swallow. No problems. Down it went. That was a turning point and from then on Kris has swallowed everything and has never used the PEG again.
He was tired for the first 3 - 4 months and used to nap in the afternoons, but Charles can do this while you are at work.
I would just take it one day at a time and see how you both go. It is a time of adjustment. You will both get through this.
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!