Having options are good. I basically had all the treatments you are doing or considering, mostly alone, which isn't easy. Are you doing the induction chemo as an in-patient or as an out-patient? Although everyone is different, if you did well managing yourself with induction chemo, doing radiation, either IMRT, and more so with Protons may not be anymore difficult, unless you do chemo with it also, which the attached trial states may be a possibility, and then the toxicities also increase, and dependent on the type. I'm one that found the toxicities from chemo to be worse than radiation, but was still no walk in the park, and just tried to get through each day, that's it. The toxicities from radiation usually begin 10-14 days after starting treament, the worst being the set fee weeks, and after, but you may already have side effects from the chemo, can compound radiation effects.

When I stayed a Hope Lodge some of the patients had a friend or relative stay with them a few days or a week or so at a time, which helped.

IMRT can be done elsewhere, even following MDAndersons treatment plan, if mutually agreeable. One thing to consider is if you need further treatment, one day, hopefully not, being at one of the top CCC already helps since another institution may not want to accept you as a patient, if treated elsewhere. It has happened to me.

http://clinicaltrials.gov/ct2/show/NCT01893307

Good luck.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs