I'm glad things are improving for Larry. That must be a huge relief for you, too!

If you ever find an RO with a bubbly personality, let me know. Between them and neurologists, there's not a lot of touchy-feely going on, in my world at least. I prefer the smartest available because the things they do and know keep me alive.

I've also found a good SLP understands swallow even better than most ENT's and nurse. That's all they do. I also had silent aspiration and even now, saliva and mucus runs unabated into my lungs. I don't choke at all as it happened over time and the body adjusts. I hack up food particles for hours after meals and have had pneumonia off and on for a couple of years.

If you challenge the knowledge of one provider to another, you may not get the care that is needed. Trust they know what they are doing. If you can't trust them, you have the wrong doctors and nurses.

Best wishes for continued good news and healing for Larry.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023