Elizabeth,
I don't blame you for being frustrated with your doctors' flinging statics around. HPV related tonsil cancer is very curable, but the problem in your case is that a large number of lymph nodes were positive since it took so long for your diagnosis. Adding the chemo and radiation to the surgery will help take care of anything the surgeon missed. Your doctor is full of it with the 100% cure rate (but you knew that already), however your oncologist and chemo guy provided estimates that are really pretty closely aligned. The surgery did the heavy lifting, but the additional treatment will do the mopping up.

If you go for a second opinion (and I think you should), you should discuss your concerns about quality of life. If you go to a CCC as Christine suggests, they will be very much aware of the most recent results with HPV related cancers FOLLOWING SURGERY and should be able to recommend a reasonable plan.

Maria




CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.