JG,

I am glad you are handling Cisplatin (tolerably) well. Be on the lookout for the side effects they warned you about, though (hearing loss, tinnitus, etc.) as they may come on suddenly and should be addressed immediately.

I lost about 20 pounds in total during my treatment and have lost another 10 since due to persistent nausea/vomiting issues so listen to these fine folks and keep doing what you can to keep your weight up.

I found that unprocessed foods (cabbage, plain beef, cucumbers, watermelon) held their flavor tolerably well although any sugars burned my throat and even these sorts of things kind of changed flavor a bit. For example, beef tasted mostly like beef, but a little less so -- at least, however, I could eat it without feeling revolted. That would be my advice.

I had a similar problem wih pickles and still do -- they taste rubbish to me -- metallic and chemically -- a guy I saw every day in treatment said he still loved them -- guess it's an individual thing.

Hang tough and listen to these folks -- they helped me get through -- you're living the journey and you will make it through to the end.

The Hellion

P.S. sounds like you have a very positive attitude.


SCC Base of Tongue
Diagnosed 3/5/2014 T2N2C
PEG Installed 3/19/2014
Chemo/Rad 3/27/2014
1x Cisplatin, 4+ TaxoCarboplat + 33 * 70 gy
Chemo FINISHED 5/5/2014
Rads FINISHED
PEG tube removed 10/08/14
Back to work 4 Aug full time
1/19/15 - diagnosed mets to lungs
7/17/15 began Pembrolizumab clinical trial demitted October 2015
1/14/16 began Tremi-MEDI trial
-This far, no further! On ne passe pas!

**update** passed away 3/26/16 RIP, you will be missed by many