Missyp, when John was demitted from the trial, we were told that the trial had a 10% chance of working. Chemo has a 20% chance. The goal now is maintenance for us. We have both agreed to take it as it comes. We have found our therapists (yes, we each have our own) very helpful in coming to terms with reality. We have not given up, but we feel we are better at coping.

Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.